Living with dementia: Stigma and language

August 6, 2024

The Cambridge Dictionary describes stigma as 'a strong feeling of disapproval that most people in a society have about something, especially when this is unfair.'

The language we use when describing dementia or someone living with dementia has a huge impact on how others view the person and the diagnosis.

News articles often talk about ‘dementia sufferers’, care homes that advertise ‘EMI (Elderly and Mentally Infirm) beds’ and care staff who use words like ‘double’ and ‘toileting’ when describing people's needs.

With so much negative language surrounding people living with dementia is it any wonder there is still so much fear around dementia, leaving people and their loved ones feeling isolated from society?

We have all likely used these terms at some point or another, but it’s important to make a conscious effort to use language that positively describes a person and their diagnosis, meaning little by little we can reduce the stigma surrounding dementia. 

So, what terms could we use in day-to-day life? The main thing to remember is to use words that you would prefer others used to describe you.

These small, day-to-day changes in the language you use can have a huge impact on someone living with dementia and their loved ones, making them feel a part of society rather than feeling as though they need to hide away. But ultimately, it can make people living with dementia feel less alone.

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